After a few bad nights of sleep for both McRuger and myself, I convinced McRuger to let me take the first night shift for Pumpkin’s bottle. It’s the first since January, and it’s odd to be awake in the house while everyone else sleeps. It’s SOOOOO quiet!
When McRuger asked me what I was going to do with my time, I told him I was just going to blog, putz around on FB, and do some reading. And here I am! YAY.
Today was a good day. I left the house with Cadet (Pumpkin and McRuger stayed at home) around 9:30 and headed to the mountains for a hike with some friends. L is a local mama who I met through some FB groups we were both part of. For the last several months, we’ve been getting together for hikes, walks, playdates… her son (D) is about 18 months younger than Cadet. We have an absolutely great time together. We have many similar interests (as do our husbands) and can talk about anything…and we make each other laugh. She’s become a close friend in these last months. One thing we both enjoy is being out in nature…no matter what the weather.
So today, despite the rain, we headed out for a great hike along a local creek. We had a blast. Cadet got soaking wet, played in every mud puddle, creek bank, and sandy spot he could find. Cadet ran down muddy slopes, balanced on logs, threw rocks in the creek, and “found gold” (pyrite). L and I took tons of photos of the boys, mushrooms, slugs, and interesting root formations. We have a mutual love of photography, and nature.
We got astonishingly wet. Cadet’s boots had about 2 cups of water in them when I changed his clothes in the parking lot. I had a smile on my face the entire time we were hiking. It reminded me of being a kid…not caring about the weather, just enjoying being outside.
Coming home, I just couldn’t stop smiling. What a great way to spend the day. Wild surges of energy just seemed to course through my body. It was a healing day. I can’t wait for more!
Speaking of healing, my latest blood tests came back and things are looking good. I’m very close to “normal” on several values, and a few have crossed over into the “normal” territory. My blood clotting factors are still running a bit long (and holding steady there), but they are still only a few ticks above what they should be…nothing like what I was seeing at the hospital. My protein and albumen levels are low-ish, but not scary-low.
I’ll see Dr.A in about a week for my monthly check-in. I have a whole boat-load of questions for him…mostly about what is/isn’t allowed for AIH patients. I’ll be traveling to the farm for Easter, so I have questions about that. In reality, I’ll only be gone for 4 nights and I’ll only be 6 hours away from the hospital…but I’m a little nervous about being out of range of some awesome healthcare professionals. It’s funny, because I usually go 6-7 days between blood draws…but it’s just another step towards “normal life”.
The boys are doing pretty well these days. Sure, we have bad days and good days…but nothing too catastrophic.
Pumpkin is still teething (again? still?), which makes some days harder on him than others. Most of the time, he’s a smiling little bundle of curiosity. He loves to climb (which gives me a heart attack), and copy everything Cadet does. I love watching them play together. He recently had a check-up with Dr.Smiles, and Pumpkin is right on track for everything. He needs to be eating more solid foods (still a fight with him), but everything else is fine. He weighs just over 25 lbs and is very tall for his age…his head circumference is over 100% for his age.
Cadet is doing well. Sleep is still really hard for him, and it’s become more of a challenge to help him overcome that. He can still be up for hours in the middle of the night (often waking up Pumpkin…which isn’t good). But, overall, I’m so proud of him most days. He’s really trying to learn to help: with Pumpkin, tasks around the house, school, and just being attentive. Dr.M and I are working on a new theory for some of Cadet’s issues with fine motor skills…we’re thinking he might have problems with visual memory. He often has trouble making his hands do what he knows they need to do…and he gets frustrated by it. Plus, while he has great vision, he often says he can’t “see” something right in front of him…even after scanning several times. So, we’ve been probing that area of his development. I’ve been working on having him “look” for things as we’re out and about…trying to strengthen his visual awareness.
McRuger is worn out. I don’t know how else to put it. He’s just worn. Most days he just looks like he’s barely functioning. Sleep has been a huge issue for him. He’s just not getting enough, and it’s hard to watch. Most of the time, his lack of sleep is stemming from wanting to help me get more sleep…which works only some of the time (because, you know, I’m on steroids…and sleep is tricky for me). He’s pushing hard at work and at home…which means he’s really getting no real down-time. I’ve told him that I want him to start handing more responsibility over to me, but we haven’t agreed on how that looks yet.
So, I guess, things are overall pretty decent here. Sure, it’s not perfect, and the laundry and dishes are never-ending…but it sure could be worse! I hope all is well in your world! And while I may not be writing often…I am doing a ton of reading, and enjoy hearing about how your lives are going!!